🍿 We are proud to share that 'Rare, Well Done,' the reality TV show we created to bring rare disease stories into mainstream culture, is making its debut on premium streaming service Peacock on… | Avalere Health

Rare Disease Day 2026 Official Video | Devyser

Today is Rare Disease Day. With over 300 million people worldwide living with a rare disease, awareness is more important than ever. TUBB4A-related Leukodystrophy is among the rarest, affecting an estimated 1 in 37 million people — a diagnosis so uncommon that many doctors will never encounter it in their careers. The statistics about rare diseases are astonishing to read — now imagine living it. While I am grateful there is a day set aside to focus on rare diseases and our community, the advoca

From rarity to recognition: A brighter future for rare disease patients

Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2023 - National Organization for Rare Disorders