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34K views · 165 reactions | 'Without Spinraza, I'm fairly certain that Zac probably wouldn't be here.' As the Scottish Government fast-tracks a treatment for spinal muscular atrophy, we spoke to Amy Cameron, who says the 'miracle' medicine saved her son's life. Read more: https://bit.ly/2GrT4cN | STV News | Facebook
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Olá meus queridos Ontem tomei a segunda dose do Spinraza logo cedo, custa um bocadinho mas correu bem e desta vez reagi melhor, não fiquei rabugenta só estava um bocadinho desconfortável 😥 Ficamos no recobro 3 horinhas e o regresso a casa foi tranquilo 😊 Os papás andam cansaditos e por isso ontem não demos noticias, mas temos novidades, amanhã vai haver uma reunião para definir as condições e a data para administrar o Zolgensma 🙏 Eu nasci com uma missão e acreditamos nessa missão, estamos (em
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