Winter was in full swing, and the air was sharp and crisp, with a very low wind chill. Walking across the parking lot dressed in full winter gear like I was preparing to climb Mount Everest, I felt ...

I’ve spent my life navigating cystic fibrosis alongside anxiety, OCD, and depression — struggles that once led me to numb everything with alcohol until a wake‑up call changed everything. Through ...

Growing up, I was an average kid. I played sports, I ran around in the park — always on the go. I couldn’t sit still. However, unlike most kids, my life was a bit different. I was born with cystic ...

Cystic fibrosis care is changing quickly — with better treatments, longer lives, and new tools like telehealth. This is pushing us to rethink what high quality, individualized care should look like.

For those living with cystic fibrosis, it does not pause when you clock in to work. It doesn’t wait until meetings are over or the workday officially begins. CF is present long before arrival — in ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

Although I’m of Indian origin, I was born in South Korea, a country I associate with wonderful natural beauty and amazing cuisine. My early life unfolded against the vibrant backdrop of cherry ...

Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...

It was December 2002, Christmas break. My son, Nathan, was 7, and the lights blinking across the living room haloed his skinny frame. Stomping in, he planted his fists on his hips, nailed his feet ...

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...

This blog contains content about an eating disorder. If you or someone you know has an eating disorder, contact the National Eating Disorders Association helpline by calling 1-800-931-2237.