Rare disease support: How to get help, resources, manage symptoms, find doctors
Are you battling a rare disease or think you might be suffering from one? If so, there are resources to get help from ...
Repurposed FDA-approved drug could uncover potential treatment for rare genetic disorders
In a new study, researchers at McMaster University have identified a potential treatment for Sandhoff and Tay-Sachs ...
Lady Gaga Releases ‘Disease (The Antidote Live)’ Single
The ballad-like performance version of the song was revealed in the new video that dropped on Wednesday (Nov. 13) afternoon.
Opinion: California’s Rare Disease Council Will Transform Care for People with ALS
California’s recent decision to create a Rare Disease Advisory Council is a milestone that brings new hope to people living ...
How logistics shape the success of rare disease trials
At two upcoming events on rare disease clinical trials and data management, experts will dissect the latest trends and ...
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Oranda Therapeutics Announces Series A Funding Round to support its mission: to improve the lives of patients living with rare disease
Oranda Therapeutics, a new Irish headquartered rare disease company with an innovative, fast to market, commercial approach, today announces the launch of their Series A Funding round to coincide with ...
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My battle against pulmonary hypertension is heartfelt mission — Ayotunde Omitogun
“November is Pulmonary Hypertension Awareness Month, and this year’s theme is ‘Let Your Light Shine ... Further, she ...
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Cherokee Nation Hosts First Rare Disease Summit to Address Overlooked Health Care Needs
Guest Opinion. About 7,000 identified rare diseases impact approximately 1 in 10 Oklahomans. The Cherokee Nation's first Rare ...