Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.

A common type of prenatal screening called noninvasive prenatal testing (NIPT) is typically done between the 10th and 13th weeks of pregnancy. This blood test looks for certain genetic birth defects ...

I thought I had cystic fibrosis figured out. Growing up, I had challenges like a brutal morning cough that lasted for hours and a constant sense of fatigue, but I still felt like one of the lucky ones ...

I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.

WASHINGTON, D.C. (March 6, 2025) — On Monday, the Department of Health and Human Services (HHS) published a document in the Federal Register announcing rescission to a long-standing policy that ...

I was diagnosed with cystic fibrosis the day I was born. Growing up with a chronic illness has been one of the most challenging experiences of my life. The constant treatments, hospital visits, and ...