Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.
Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community.
My story was featured in the third plenary at the North American Cystic Fibrosis Foundation, which covered the challenges of health disparities in CF care and research, including access issues.
As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.
For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...
Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...
Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on ...
On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...
BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...
The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...
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