Are you battling a rare disease or think you might be suffering from one? If so, there are resources to get help from ...
The term "rare disease" sounds unfamiliar or irrelevant to most people, as it is seen as something that affects a small minority. The shocking reality is that such diseases are not so rare if ...
As the number of persons suffering from particular rare disease is small, they do not constitute a significant market for drug manufacturers to develop and bring to market these drugs for them. For ...
Eponyms — diseases named after a person — can cause serious confusion. That is particularly true in one rare disease ...
While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.
The KGI position proved better suited to half-time employment, so while I still work a great ... required to assure that patients with rare diseases are not locked out of the process of getting ...
The University of Minnesota’s annual Rare Disease Day seminar this year ... “Our restorations are not often covered by medical insurance plans, so we end up getting bills for like $100,000 in order to ...
The symptoms usually indicate a differential diagnosis of respiratory, cardiac, gastrointestinal, neurological, and infectious disease ... rare. Collectively, however, EM disorders are not ...
By Dr. Kaushik Mandal Rare diseases very often remain in the shadows, as common people have limited awareness about them.
He further explains, "Unlike cancer or diabetes, rare diseases like NS are not priority research objectives among pharmaceutical companies, and the small groups of patients suffering from them are ...
Guest Opinion. About 7,000 identified rare diseases impact approximately 1 in 10 Oklahomans. The Cherokee Nation's first Rare ...
so it’s not common for adults to get it. But if you’re pregnant and are exposed to fifth disease, speak with your doctor, because there is a rare risk of miscarriage.