CNBC Cures: A father and a doctor on how raising a child with Angelman syndrome changed him

A doctor reflects on how raising a son with Angelman syndrome reshaped his family, deepened his empathy and turned grief into ...
Hosted on MSN

Meet Maddie, the Children’s Mercy patient battling Angelman syndrome who exudes positivity

KANSAS CITY, Mo. (KCTV) - Four-year-old Maddie loves cheese and fruit snack gummies, being right in the middle of the action, and playing with her twin sister, Kellie, and older brother, Colin. When ...
AOL

What is Angelman syndrome? The rare genetic condition affecting Colin Farrell’s son

Actor Colin Farrell has opened up about the difficult decision to move his son James, who has Angelman syndrome, into a long-term care facility. In an interview this week the actor, 48, revealed he ...
St. Louis Post-Dispatch

Supporting Angelman syndrome research helps create a better life for thousands more

Angelman syndrome is a severe, lifelong disorder, similar in its genetic makeup to several other disorders, including autism and cerebral palsy. My daughter, Karly Rose, was diagnosed with Angelman ...
Seeking Alpha

Ultragenyx Completes Enrollment of Phase 3 Aspire Study Evaluating GTX-102 for the Treatment of Angelman Syndrome

Company expects to complete Phase 3 Aspire study in the second half of 2026 Aurora study of GTX-102 in additional ages and genotypes on track to initiate in the second half of 2025 “The accelerated ...
AOL

Colin Farrell opens up about son James' life with Angelman syndrome

Colin Farrell is opening up about his son James' Angelman syndrome diagnosis and what he's doing to help others with intellectual disabilities. "I want the world to be kind to James," Farrell told ...
FITBOOK magazine on MSN

This is not a normal developmental delay: A mother on Angelman syndrome

Children see the world differently than we do. They trust, they laugh, they need us–every moment. The feeling is all the more difficult when you realize something is wrong. That’s exactly how the ...